Wednesday, October 31, 2007

more drugs

I have been struggling with spasticity in the backs of my legs the past week or so. It's just natural that as I get over the fevers caused by the Rebif that something new crops up. This isn't so bad as far as the spasticity I've felt Before Steroids. My legs are tight, but I don't have balance or walking problems... having to say something like that is pretty difficult, but there it is. My major concern is losing the ability to walk, my Neurologist always listens carefully when I describe any problems with my legs, or balance. But. The good news is that my recovery After Steroids has been remarkable. I only have a bare glimmer of pain/numbness in my toes, only periodic parasthesia in various place, but not in my legs at all.

Kris and I went in for another visit with my Neuro just yesterday. Due to my complaints about stiff legs, even though I'm adhering to the stretching regimen provided by my therapist, was a concern. She proscribed Baclofen to help relieve it. It has not really affected me much, other than discomfort and tighter than normal muscles, particularly my calves and hamstrings. I'll start it at a half 10mg pill per day tomorrow. Some side effects include drowsiness and mood swings - fun!

Monday, October 15, 2007


OK, this is ridiculous I feel so crappy at the moment. I've been sick all weekend with a head cold, fever, completely clogged up nose... And now, I have a fever of 101.2! This is one hour after I took my Advil and one hour BEFORE taking the Rebif, which gives me a fever! Ugh, I don't know what to do for myself tonite, I hope I can have some comfort from the endless drugs...

To top it all off, my injection for tonite goes into my left buttock, it's like salt on the wounds! Wish me luck.

Friday, October 12, 2007

injection day 22

Yes, 22!! Holy crap!

Finishing up the first month of full dosage injections. Many more left, but this was bound to be the hardest due to injection site reactions, flu symptoms. So far, I've only had a couple injection reactions, first in my left leg, then in my left stomach. The stomach one was brutal, I tried using a cold compress because they had been painful recently. It instantly bruised and is just starting to go down after 1.5 weeks. The fevers I feel like I have under control with an Advil regimen before and after and during the next day. I don't necessarily like the idea of taking ibuprofen every day so I plan to follow up with my neuro on any particular side effects are possible with it.

Blood, needles, no problem! But sitting at my table getting ready and facing the reality I have MS three times a week is hard. Especially now, my sumptoms have almost completely subsided. I feel good, healthy and I'm playing great on my indoor team. But I had decided to dig into the Rebif program and I will continue to do so, occasionally I read reminders of the path that MS takes in a lot of people, and steps I can take to minimize and push off those relapses are easy to undertake.

Thursday, October 4, 2007

fevers regularly after injection

That has been the theme of my last week and a half or so. It coincides of course with stepping up to a full dosage. Last Thu. night, I had a fever of 101, I stayed home from my soccer game even though I had really wanted to play, but it was at 10pm and Kris convinced me it was a bad idea. It's odd to have a fever from the injection, because I don't have the normal symptoms that go along with fevers -- no headache, runny nose, cough... But, it does wipe me out a bit, and the fever/chills/sweating is uncomfortable.

Fortunately, advil holds the fever at bay. I've been stubborn a few times and not taken it, as well as skipping it while on a business trip. THAT was a bad idea, I had no thermometer so I don't know what my temp was, but this past Monday was a horrible experience.

First of all, injecting yourself while alone in a hotel room just doesn't feel right, it made me feel lonely, thinking, 'what the hell has gotten me to this point!??' I had no advil left, usually my bag has a bottle, but I hadn't had a fever the previous injection, and was hoping this would go the same. Nope. 3am I woke up with a fever, and over the course of the next 3 hours it wouldn't let up. I was hot, sweaty and nervous. My thoughts were to maybe call an ambulance, my fever felt high. I couldn't go out and get myself Advil either. So, I called the front desk and spoke to a gentlement with broken English. I conveyed the idea that I was sick and needed Advil, he promised he would send someone out to get it - great! I took a coule at 5:30am and put a cold facecloth on my forehead again. By 7:30 I got to sleep.

I managed to get home Wed. night instead of going through this at the hotel again. I had to wait until 11:30pm to do the injection, but that was better than doing it at an airport. That may have left me feeling more detached from normalcy than my hotel-injection experience.

Fast forward to Thu. of this week, soccer day, I look forward to it all week. Drove into the office in the morning to submit my expenses and did a bit of work after getting home. I felt OK, no fever or chills. And it was a great game, I played with more pace than any other night and our team clicked after a rough first half. I was able to score four goals and notch three or so assists. It has probably been more than half a year since I've been able to be that productive, it was really an incredibly good feeling. I had a great strike, a great run through the D, and a couple nice passes, so it was certainly fulfilling.

I got feverish again on the drive home though, and when I took my temp it was 101.4! Kris got home and we checked again 102.2! What the hell is going on! Advil at 8:30 and around 11:00 the fever is gone.

Moral of the story is that I need a fairly regular regimen of Advil for the time being. But who cares, it was a good night of soccer!